Who is Maggie Lyons?
Maggie starting have Grand Mal seizures at the age of 14 months. She was a typical baby up until 9 months of age. She started having some starring episodes along with a decrease in growth around the same time. Not until 14 months did she drop into a seizure. Later, she was diagnosed with epilepsy. Maggie started receiving services through the Help Me Grow program that Children’s Hospital set up for her. Maggie has been involved in intervention since then and continues to receive specialized instruction at her school, Forest Rose in Lancaster.
Maggie received a diagnosis of PDD-NOS, a form of autism. She received that diagnosis around the age of 3. In 2010, Maggie was having more severe seizures, drop attacks, and was diagnosed with Lennox Gastaut Syndrome, a catastrophic form of epilepsy. This form of epilepsy includes developmental disabilities that Maggie has. The Lennox Gastaut diagnosis explains what Maggie has experienced over the last 11 years. More awareness needs to be raised and this is a fantastic opportunity to do so.
Kathy, Maggie’s mother, is meeting with the Epilepsy Foundation of Central Ohio to start up and pair up with the LGS Foundation in New York to offer support to the Central Ohio Region. She plans to have a support group started by this summer.
Maggie’s family was recently a part of the Columbus Marathon. Maggie was a Miracle patient, Mile #1.