On November 18th, 2015 we took our 4 year old daughter, Allie, to the Nationwide Children’s Hospital Emergency Room because she was having an odd crying spell. I worried that I was being ridiculous, she was probably just not feeling good. Right? Wrong! Following several days of tests, Allie was diagnosed with an Arteriovenous Fistula (AVF). Basically, the veins and arteries in her brain are not connected properly. Blood is able to get to her brain, but it can’t get out. Our doctor likened it to closing off all of the exit ramps on 270. The blood circles around and around in her brain and has trouble leaving. Less than a week later, Allie had a major (8 hour) brain surgery. Her recovery was a breeze, and she was soon back to her fun, outgoing, playful self. However, over the last year, Allie required several short hospitalizations due to complications from the AVF. Just before Christmas in 2016, Allie had a seizure. The cause of the seizure was immediately clear after a CT scan. Allie had a bleed on the right side of her brain. She was rushed to emergency surgery to remove part of her skull to allow her brain to swell.
Since the surgery, Allie has faced setback after setback. The bleed caused damage to her brain. We are having difficulty managing her seizures, and the seizure medications make her very sleepy. The doctors are hopeful that she will be able to regain many of her skills, but it has been nearly impossible to start the rehabilitation process because of the sedating seizure medications and seizure activity that has intermittently continued. We are very hopeful that we will soon get to see our 5 year old daughter talking, laughing, walking, and playing again. We are very appreciative to the Hoser family for offering to give Allie the opportunity to be the benefiting child from the iRun for Jonah this year. We know that Allie’s journey will be long and hard, but we are beyond grateful for the support that we have received from our friends, family, and community.Read Allie’s Full Story with Updates »